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We are committed to helping advance COVID-19 studies quickly and effectively.COVID-19 RESOURCES & UPDATES

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Introduction

Introduction

Get the Facts

My Priorities

My Priorities

What are My Priorities?

Learn More

Learn More

Resources for Engaging as a Patient Partner

My Readiness

My Readiness

Comparing My Priorities with Perceived Benefits/Risks

My Decision

My Decision

Next Steps

The Research Process

The general steps in the research process are provided at the top of the page. By clicking on the arrows to the left and right of the research process, you can scroll to the part of the research process you are most interested in and select the FAQs that you would like to read more about under each part of the process. The research process is usually a cycle and while it often starts at “Identifying and Prioritizing,” patient partners can be involved in any step of the process, so it is presented here without a start and end.

  • Identifying and Prioritizing
  • Design
  • Development of the Grant Proposal
  • Preparation for Execution of the Study
  • Data Collection
  • Analyzing and Interpreting Data/Results
  • Dissemination
  • Implementation
  • Monitoring and Evaluation
Identifying and Prioritizing

What are Roles in the Research Process for Patient Partners?

What are the Guiding Principles of Patient Engagement in Research?

Being Part of the Team and Getting Help You Need to Participate Fully

Ground Rules for Meetings and Communications

Expense Reimbursement and Compensation

More Information about Research and Clinical Trials

An Introduction to Patient-Reported Outcomes

Evaluating Patient Engagement Partnerships

Sex and Gender in Research

Writing a paper with the research team

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