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My Decision

Introduction

Introduction

Get the Facts

My Priorities

My Priorities

What are My Priorities?

Learn More

Learn More

Resources for Engaging as a Patient Partner

My Readiness

My Readiness

Comparing My Priorities with Perceived Benefits/Risks

My Decision

My Decision

Next Steps

To this point you have worked through priorities related to engaging as a patient partner on a research team and compared those priorities to your perceived benefits and risks of being a patient partner on a research team. By reflecting on the work you have done to this point, some further questions are provided below to help determine your final decision about engaging as a patient partner on a research team.

Now it’s time to reflect by answering the following questions to help determine your final decision about engaging as a patient partner on a clinical trial team:

Are you ready to engage as a patient partner on a research team?

Do you understand where and how you may be engaged a patient partner on a research team?

Do you understand when you may be engaged as a patient partner on a research team?

Are you clear about the potential benefits and risks of engaging as a patient partner on a research team?

Do you have enough information to make a decision about engaging as a patient partner on a research team?

Do you feel sure about engaging as a patient partner on a research team?

Do you have other questions about engaging as a patient partner on a research team?


If you are conducting a clinical trial, or another type of research study, it may be possible to recruit patient partners through our partner organizations:

SPOR Networks in Chronic Disease

  1. Can-SOLVE Chronic Kidney Disease (CKD) Network
  2. Chronic Pain Network
  3. CHILD-BRIGHT Network
  4. Diabetes Action Canada Clinical Trials
  5. Inflammation, Microbiome & Alimentation Gastro-Intestinal and Neuropsychiatric Effects – IMAGINE Network
  6. Canadian Skin Patient Alliance at info@canadianskin.ca
  7. Canadian Association of Psoriasis Patients at info@canadianpsoriasis.ca
  8. Canadian Arthritis Patient Alliance at contact@arthritispatient.ca 

This decision aid is part of an ongoing research project. Project team members include:

  • Monica Parry, University of Toronto (Principal Investigator)
  • Tina Ceroni, Clinical Trials Ontario (Principal Knowledge User)
  • Marianne Park, Network of Women with Disabilities (Knowledge User)
  • Ann Kristin Bjørnnes, Oslo Metropolitan University (Co-Applicant)
  • Anne Ellis, Queen’s University (Co-Applicant)
  • Ian Gilron, Queen’s University (Co-Applicant)
  • Dawn Richards, Clinical Trials Ontario (Co-Applicant)
  • KarineToupin-April, University of Ottawa (Co-Applicant)
  • Adhiyat Najam, Diabetes Action Canada (Knowledge User)
  • David Wells, Diabetes Action Canada (Knowledge User)
  • SalimaHemani, University of Toronto (Trainee)
  • Clinical Trials Ontario (Collaborating Partner)

Funding for the development and dissemination of the Investigator Decision Aid has been provided by the Canadian Institutes of Health Research (CIHR) (Application #397455) and the Ontario SPOR Support Unit (OSSU).

If you have any questions or comments about the decision aid, please send them to spor.decisiontool@utoronto.ca or call 1-833-543-4916.

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