My Decision
Introduction
Get the Facts
My Priorities
What are My Priorities?
Learn More
Resources for Engaging as a Patient Partner
My Readiness
Comparing My Priorities with Perceived Benefits/Risks
My Decision
Next Steps
To this point you have worked through priorities related to engaging as a patient partner on a research team and compared those priorities to your perceived benefits and risks of being a patient partner on a research team. By reflecting on the work you have done to this point, some further questions are provided below to help determine your final decision about engaging as a patient partner on a research team.
Now it’s time to reflect by answering the following questions to help determine your final decision about engaging as a patient partner on a clinical trial team:
Are you ready to engage as a patient partner on a research team?
Do you understand where and how you may be engaged a patient partner on a research team?
Do you understand when you may be engaged as a patient partner on a research team?
Are you clear about the potential benefits and risks of engaging as a patient partner on a research team?
Do you have enough information to make a decision about engaging as a patient partner on a research team?
Do you feel sure about engaging as a patient partner on a research team?
Do you have other questions about engaging as a patient partner on a research team?
If you are conducting a clinical trial, or another type of research study, it may be possible to recruit patient partners through our partner organizations:
SPOR Networks in Chronic Disease
- Can-SOLVE Chronic Kidney Disease (CKD) Network
- Chronic Pain Network
- CHILD-BRIGHT Network
- Diabetes Action Canada Clinical Trials
- Inflammation, Microbiome & Alimentation Gastro-Intestinal and Neuropsychiatric Effects – IMAGINE Network
- Canadian Skin Patient Alliance at info@canadianskin.ca
- Canadian Association of Psoriasis Patients at info@canadianpsoriasis.ca
- Canadian Arthritis Patient Alliance at contact@arthritispatient.ca
This decision aid is part of an ongoing research project. Project team members include:
- Monica Parry, University of Toronto (Principal Investigator)
- Tina Ceroni, Clinical Trials Ontario (Principal Knowledge User)
- Marianne Park, Network of Women with Disabilities (Knowledge User)
- Ann Kristin Bjørnnes, Oslo Metropolitan University (Co-Applicant)
- Anne Ellis, Queen’s University (Co-Applicant)
- Ian Gilron, Queen’s University (Co-Applicant)
- Dawn Richards, Clinical Trials Ontario (Co-Applicant)
- KarineToupin-April, University of Ottawa (Co-Applicant)
- Adhiyat Najam, Diabetes Action Canada (Knowledge User)
- David Wells, Diabetes Action Canada (Knowledge User)
- SalimaHemani, University of Toronto (Trainee)
- Clinical Trials Ontario (Collaborating Partner)
Funding for the development and dissemination of the Investigator Decision Aid has been provided by the Canadian Institutes of Health Research (CIHR) (Application #397455) and the Ontario SPOR Support Unit (OSSU).
If you have any questions or comments about the decision aid, please send them to spor.decisiontool@utoronto.ca or call 1-833-543-4916.
