My Priorities

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Resources for Engaging as a Patient Partner

My Readiness

Comparing My Priorities with Perceived Benefits/Risks

Part of deciding if you are ready to engage as a patient partner on a research team depends on what areas of the research process you feel you are best able to contribute as a patient partner.

What is my priority?

The different areas where you might play a role on a research team are listed below. When you hover over them, a box will appear with what each of these parts of the research process include. Arrange these in order of priority based on where you think you could add the most to least as a patient partner on a research team. After you have done this, move to the “What are the Levels of Engagement” section to continue the exercise.

Priorities

Research Process Step

1

Identifying and Prioritizing
Identifying and Prioritizing, This is when the research question is being formed, and includes making decisions about what will be studied and how it will be studied.
2

Design
Design, When the research question is decided, a plan to answer it is developed.
3

Development of the Grant Proposal
Development of the Grant Proposal, This is a document that explains the research question, the research design, and why all of this is important. It is submitted to a funding organization for their consideration to fund.
4

Preparation for Execution of the Study
Preparation for Execution of the Study, This is before the clinical trial starts and when the team is preparing all of the details related to starting it.
5

Data Collection
Data Collection, Once the research has started, data are collected in order to help answer the research question. Depending on how the study is designed, different types of data are collected.
6

Analyzing and Interpreting Data
Analyzing and Interpreting Data, After data are collected, they are analyzed and interpreted to understand the findings.
7

Dissemination
Dissemination, This means sharing the research results beyond the research team (for example, to study participants, at conferences, and in journals).
8

Implementation
Implementation, This means using the research findings in inform everyday practice.
9

Monitoring and Evaluation
Monitoring and Evaluation, A clinical trial is often reviewed while it is process, and can be reviewed after it finishes.

What are the levels of engagement?

Identifying where patient partners will be engaged in your clinical trial is only the first step in determining your priorities. It is also important to consider The level of engagement.Inform: You will keep patient partners informed.
Consult: You will keep patient partners informed, listen and acknowledge concerns, provide feedback on how input is used.
Involve: Work with patient partners so their concerns are reflected and provide them feedback on how input is used.
Collaborate: You will work with patient partners to include their advice into decisions as much as possible.
Empower: You will implement what patient partners decide.
Match the level of patient engagement with where you envision patients being MOST engaged in your clinical trial. Select the Level of Patient engagement for the top 3 priorities for where you will engage patients as partners in the Research Process/Lifecycle.

Note: You can use the Level of Patient Engagement more than once.

Priorities

Research Process Step

Level of Patient Engagement

1

Identifying and Prioritizing
2

Design
3

Development of the Grant Proposal
4

Preparation for Execution of the Study
5

Data Collection
6

Analyzing and Interpreting Data
7

Dissemination
8

Implementation
9

Monitoring and Evaluation

My Priorities

Introduction

My Priorities

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My Readiness

My Decision

Part of deciding if you are ready to engage as a patient partner on a research team depends on what areas of the research process you feel you are best able to contribute as a patient partner.

What is my priority?

What are the levels of engagement?