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Participant Experience Toolkit

Through this toolkit, CTO aims to help its community in their efforts to improve clinical trial participants’ experiences. The goal is to help clinical trial participants feel informed and valued. In briefly reviewing the literature, the topic areas highlighted in the toolkit are those that can have a large impact on a person’s overall experience in a clinical trial. 

 

 

About this toolkit:

The toolkit is meant to provide guidance, considerations and examples and references to inspire the community. In working with the clinical trials community (patients, participants, health charities, patient organizations, Research Ethics Board representatives, clinical research coordinators, researchers, industry representatives, and others), CTO has developed five topic areas in the toolkit. To explore each topic area, click on the icons below.

Participant Information and Support

Participant Information and Support

Credible information about clinical trials to share with potential participants.

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Participant Expense Reimbursement

Participant Expense Reimbursement

Considerations when planning reimbursement processes for clinical trial participants.

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Participant Experience Surveys

Participant Experience Surveys

Considerations when planning, creating, and utilizing participant surveys.

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Plain Language Result Summaries

Plain Language Result Summaries

Some things to consider when planning and creating a plain language summary for participants.

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Thanking Participants

Thanking Participants

Some things to consider when planning, creating and providing a thank you document.

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