Skip navigation
mobile search icon

Participant Experience Toolkit

Through this toolkit, CTO aims to help its community in their efforts to improve clinical trial participants’ experiences. The goal is to help clinical trial participants feel informed and valued. In briefly reviewing the literature, the topic areas highlighted in the toolkit are those that can have a large impact on a person’s overall experience in a clinical trial. 

 

 

About this toolkit:

The toolkit is meant to provide guidance, considerations and examples and references to inspire the community. While it has been developed for clinical trials, it can also be used for other types of clinical research including observational studies. In working with the clinical trials community (patients, participants, health charities, patient organizations, Research Ethics Board representatives, clinical research coordinators, researchers, industry representatives, and others), CTO has developed five topic areas in the toolkit. To explore each topic area, click on the icons below.

 

 

Participant Information and Support

Participant Information and Support

Credible information about clinical trials to share with potential participants.

Learn More
Participant Expense Reimbursement

Participant Expense Reimbursement

Considerations when planning reimbursement processes for clinical trial participants.

Learn More
Participant Experience Surveys

Participant Experience Surveys

Considerations when planning, creating, and utilizing participant surveys.

Learn More
Plain Language Result Summaries for Adult Clinical Trials

Plain Language Result Summaries for Adult Clinical Trials

Some things to consider when planning and creating a plain language summary for adult participants.

Learn More
Plain Language Result Summaries for Pediatric Clinical Trials

Plain Language Result Summaries for Pediatric Clinical Trials

Some things to consider when planning and creating a plain language summary for pediatric participants.

Learn More
Thanking Participants

Thanking Participants

Some things to consider when planning, creating and providing a thank you document.

Learn More

Members of our clinical trials community explain how they participated in co-creating the Toolkit, its importance, and how they will use it.

We worked in collaboration with Clinical Trials BC on the development of the Thanking Participants and Plain Language Results Summary parts of this Toolkit. CTBC’s Participant Experience resources can be found here.

back to top